Welcome to The Usher Syndrome Foundation

The Foundation

Our organization's most important goal is to generate financial resources to support Usher Syndrome research. Our dedicated directors and members have come together in an effort to help support research programs focused on the development of treatments that will slow the affects of this disease, stop the deterioration of retina cells and reverse the effects of Usher Syndrome, the leading cause of deaf-blind diseases. With our devoted supporters we can help the medical community find a cure

The Usher Syndrome Foundation, Inc. (USF) is a nonprofit organization dedicated to awareness of and finding a cure for Usher Syndrome.

SOURCE Usher Syndrome Foundation, Inc.
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Our 2nd annual USF Valentine’s Dance and Auction will be held on February 13, 2010 at Windows off Washington. Please click here to learn more about this event or here to buy tickets online.

  • Inspiration

    Megan O’Neill, born with a moderate hearing impairment was studying to be an architect at the University of Kansas when it was discovered that an increased difficulty with her vision was due to Usher Syndrome. At 25 years of age, Megan is already considered legally blind, and her vision continues to rapidly deteriorate.Find out more about Megan

  • About Usher Syndrome

    About 20,000 people in the United States have Usher syndrome. It is the leading cause of combined deafness and blindness world wide. At this time there is no cure for Usher syndrome and treatments are experimental. As it is the rarest form of RP (retinitis pigmentosa), it is afforded the least amount of funding from organizations that raise money for research of RP and other forms of blindness.Find out more about Usher Syndrome