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  • Inspiration

    Megan O’Neill, born with a moderate hearing impairment was studying to be an architect at the University of Kansas when it was discovered that an increased difficulty with her vision was due to Usher Syndrome. At 25 years of age, Megan is already considered legally blind, and her vision continues to rapidly deteriorate.Find out more about Megan

  • About Usher Syndrome

    About 20,000 people in the United States have Usher syndrome. It is the leading cause of combined deafness and blindness world wide. At this time there is no cure for Usher syndrome and treatments are experimental. As it is the rarest form of RP (retinitis pigmentosa), it is afforded the least amount of funding from organizations that raise money for research of RP and other forms of blindness.Find out more about Usher Syndrome