For more information about the foundation, please contact:
Theresa Cacciatore
Usher Syndrome Foundation
5319 Shaw Ave
St. Louis, MO 63110
314-283-1227
theresa@ushersyndromefoundation.org
For more information about purchasing tickets, please contact:
Nicole Schmitt
Usher Syndrome Foundation
6129 Hoffman
St. Louis, MO 63139
314-791-4224
nicole@ushersyndromefoundation.org
Megan O’Neill, born with a moderate hearing impairment was studying to be an architect at the University of Kansas when it was discovered that an increased difficulty with her vision was due to Usher Syndrome. At 25 years of age, Megan is already considered legally blind, and her vision continues to rapidly deteriorate.Find out more about Megan
About 20,000 people in the United States have Usher syndrome. It is the leading cause of combined deafness and blindness world wide. At this time there is no cure for Usher syndrome and treatments are experimental. As it is the rarest form of RP (retinitis pigmentosa), it is afforded the least amount of funding from organizations that raise money for research of RP and other forms of blindness.Find out more about Usher Syndrome