2009 Usher Syndrome Foundation
Valentine’s Day Dance & Silent Auction Committee
Special thanks to the heads of our committee’s who spent many hours patiently helping us find our way through formulating our foundation and helping us plan and implement this kick-off fundraiser
Marilyn Beck
Christine Bettlach
Laurie Brinker
Tom Brooks
Lauren Cacciatore
Suzy Cerioti
Laura Dick
Michelle Fahy
Ashley Fleming
Erin O’Neill
Peggy Roth
Nicole Schmitt
And to all our volunteers.
Mary Clair Austin |
Nicole Bettlach |
Matty Bettlach |
Mary Bettlach |
Danielle Giessman |
Johnnie Roth |
Marge Baxter |
David Beck |
Daniel O'Neill |
Martina Bettlach |
Michelle Fahy |
Keagan O'Neill |
Tom Brooks |
Katie LaMartina |
Timmy O'Neill |
Alex 'Fernando' Fernandez |
Lauren Cacciatore |
Andrew Bettlach |
Mike Beck |
Judy O'Neill |
Pete Cacciatore |
Suzie Bettlach |
Steven A. Bettlach |
Hannah Ross |
Laurie Bettlach |
Annie O'Neill |
Carrie Roth |
Jayne Vollmer |
Heather Amber Bettlach |
Jim Roth |
Tom Brinker |
Carol Light |
Kevin Light |
Laura Dick |
Brian Bettlach |
Debbie Gage |
Tara Bettlach |
Debbie Cacciatore |
Geoffrey Bettlach |
Mike O'Neill |
Jack O'Neill |
Mary Pat O'Neill |
Liz Heitman |
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Special thanks to Tim & Lisa Berra, and the Oxalosis & Hyperoxaluria Foundation (OHF) for their contributions. Without their very generous donation and encouragement of this foundation may not have gotten off the ground. We would also like to specially thank Suzy Ceriotti whose enthusiasm and selfless commitment to our cause. From the bottom of our hearts we thank you for your support!
And to DHD Entertainment, for donating video services. Special thanks to Ashley Fleming for her hard work, difficult hours and creative abilities in producing our video in one take and lots of late hours editing in her own time. My ‘redheaded’ daughter! We love you.
Megan O’Neill, born with a moderate hearing impairment, was studying to be an architect at the University of Kansas when it was discovered that an increased difficulty with her vision was actually due to Usher syndrome. A condition we had never heard of until that day. At 23 years of age, Megan is already considered legally blind.Find out more about Megan
About 20,000 people in the United States have Usher syndrome. It is the leading cause of combined deafness and blindness world wide. At this time there is no cure for Usher syndrome and treatments are experimental. As it is the rarest form of RP (retinitis pigmentosa), it is afforded the least amount of funding from organizations that raise money for research of RP and other forms of blindness.Find out more about Usher Syndrome